Living With SMA

19 - Part 4: SMA Life Through The Ages

August 26, 2022 Spinal Muscular Atrophy UK (SMA UK)
Living With SMA
19 - Part 4: SMA Life Through The Ages
Show Notes Chapter Markers

Welcome to the Living With SMA Podcast.

PART 4 provides a fitting finale to a Episode 19 of the #LivingWithSMA Podcast.  SMA UK Host Luis Canto E Castro chats to 11 year old Sonny and his mum Grace about what life is like with SMA. 

As August is SMA Awareness Month, we are shinning the spotlight on Spinal Muscular Atrophy by inviting 4 different guests from across the SMA Community to share their own lived experience.   

Watch this episode on our YouTube channel here.

#LivingWithSMA  #SMALifeThroughTheAges #SMAUK #SMA #SpinalMuscularAtrophy 

Each of our guests today shares their own personal views and individual stories.

You can contact SMA UK on the following social media platforms ⬇️⬇️

If you do have any questions for Luis, Sonny, Grace and the team or would like to participate in any of our podcasts please email

Living With SMA - 'SMA Life Through the Ages' disclaimer:
The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

What can you tell us about yourself Sonny?
When were you diagnosed with SMA?
What kind of support has been available to you in terms of information or help from clinicians?
What was your 'Picnic in the Park' experience like?
What do you want to do with your future?